http://healthland.time.com/2013/03/22/qa-author-emily-rapp-writes-about-how-to-love-a-dying-baby/
As my mother has said before, no mother should ever have to barry her children. However that is what author Emily Rapp and her family went through. Her baby Ronan has resently passed at the young age of just three. The worst part of the whole story is that they knew it was going to happen. At birth Ronan's rare disease went undetected and was too late to cure. The baby suffered from a disease known as Tay-Sachs disease. It doesnt just quickly take the lives of young children. It causes blindness, seizures, and paralysism all before the age of three.
Put yourself in the parents situation. They had to sit there and watch as thier young baby was dying knowing that there is nothing that they could do prevent the inevitable. All they could do is charish the time that they had with Ronan and keep as much hope as possible.
I couldn't imagine ever losing someone that young and that close to me so early in their life. This must put a large push in the curing of diseases, organizations that are for the cure of diseases, ( I couldn't say it in a way that made sense). If I were the mother, family member, neighbor of that child, I would feel a huge sense of urgency to find a cure to that disease. It is what pushes people that do it for a living.
ReplyDeleteYour child is the manifestation of all your dreams and hopes, ad to watch him or her die so slowly is like watching your future crumble apart. In all honesty, having your baby die is probably the lagest failure anyone can have, and it's not your fault, a failure in which you had no power or choice in.
ReplyDeleteI agree that no parents should ever have to watch their child pass away and have no control over it- especially at such a young age. I can't imagine what the parents are going through. While the struggle that these parents face is more than I could understand- I also believe that the struggle of the medical aspect of this situation is also huge. The fact that this illness went undetected and could have been treated makes me wonder why it went unnoticed. To think that somebody's life could have been saved. It is so sad.
ReplyDeleteTo have to watch something like that must be outright devastating. Its a shame that they dont have better early detection procedures for babies to keep things like this from happening.
ReplyDelete