http://healthland.time.com/2013/03/22/qa-author-emily-rapp-writes-about-how-to-love-a-dying-baby/
As my mother has said before, no mother should ever have to barry her children. However that is what author Emily Rapp and her family went through. Her baby Ronan has resently passed at the young age of just three. The worst part of the whole story is that they knew it was going to happen. At birth Ronan's rare disease went undetected and was too late to cure. The baby suffered from a disease known as Tay-Sachs disease. It doesnt just quickly take the lives of young children. It causes blindness, seizures, and paralysism all before the age of three.
Put yourself in the parents situation. They had to sit there and watch as thier young baby was dying knowing that there is nothing that they could do prevent the inevitable. All they could do is charish the time that they had with Ronan and keep as much hope as possible.